4 days of Haylee's hair thinning and I keep going back and forth on weather I should just shave it. People keep saying to leave it alone but easier said than done because im the one picking up chunks of hair all over my house. I HATE HAIR, I hate my own hair on things and now I have chunks of it lol Im going to talk to her doctor on tuesday and see how common this is because I cant find a thing online, any kind of information and its kinda frustrating. We do no another family whos daughter lost her hair a second time so maybe ill talk with them...So frustrating :( Lately I have felt a lot of anxiety with Haylee and her health. Before these last 3 weeks I was pretty at ease with it and now I feel like anywhere we go its dangerous for her health. When she got her pictures taken there was a little girl there who was sick and I thought for sure I was going to pass out with worry that something is slowly creeping into her lol and nervous to do family events because people who dont know dont understand what its like to have a child that immune system is barely there. Its so different when your adult and have cancer so I hate Haylee being compared to adult cancer patients, yes they can be around people because they are adults they can make that choice Haylee is 4 and I have to make that choice if I want her around 1 or 20 people. I mean I cant go around and keep putting hand sanitizer on people hands or Lysol people and their homes and I dont know whos all going to be there that might have been sick 2 days ago with a fever and are now around my child. Yeah ill make the choice to protect my child that has cancer. People dont know but if Haylee was to get extremely sick and get pneumonia she could die. Im usually hush hush on all of this but people who think they have a idea what its like because they googled it online think again. I was told by another family to stop worrying about hurting peoples feelings and if its something I dont like to hear about Haylee and her illness then to tell them how it is because we are living this and they arent... I think this is why I started this blog so that i can write down how I feel about all of this. Well off to clean Haylees room she has a fun surprise coming over later tonight!

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