Friday, February 6, 2015

Just hair??

There are always some kind of obstacle when your child has cancer. Something is always around the corner like hospital stays due to a fever over 100.4 when a normal child thats nothing to be too worried about and so much more . When your first told your child has cancer as a mother to a small little girl of course I ask will her hair fall out?? and like any other mother to a small little girl you do not want to hear yes, tho this is true weather boy or girl but with a boy I feel I would of handled it better because most boys already have short hair but Haylee had long, bouncing curly hair. Well a little over a month maybe less into treatment her hair started falling out, it was like a husky dog shedding its hair...it was EVERYWHERE. We finally decided to shave it and when Haylee walked threw the door for the first time with no hair it hit home, my little girl has cancer and its just not on the inside anymore its on the outside for the whole world to see. I was broken and of course know one understood but the families who were in my shoes. Anyways she was bold what felt like forever and all of a sudden her little bold head was getting some hair, peach fuzz to give you a visual lol well 1 year and almost 4 months later her hair had its curl back and it was just barely touching her shoulders.A few months ago I was beyond excited that I could walk into a store and buy hair ties for her and that I could finally have her wear all the bows we had made for her, its hard to understand but its the kind of excitement you get when your baby's hair is just long enough to put a piggy in lol Well on Feb. 5th Haylee came out asking for help to get her night gown off, while I was taking it off I noticed the back of her night gown was just covered in hair and when I ran my fingers threw her hair my heart just sunk, chunks of hair were falling out and I felt like we were in Memphis again reliving the early stages of her cancer. I turned to facebook for some comfort, which I dont know why i do when I try to post positive post about Haylee but I needed some kind words.This little girl has lived threw 16 months of living in a body thats getting treated for cancer thats 486 days of this. She misses school, misses being able to do fun things with friends, family events, big birthdays and so much more and here she is again with more bad news. So taking this to facebook I hear "shes beautiful with or without hair" "It's just hair, it will grow back" and some other comments that I wish i could just trade places with that person for 1 minute and be the one on the other end of the computer typing that comment. YES its just hair but its hair on a 4 year old not adult who understand that chemo is doing this, shes 4 and yes wise for her age she is still 4. Here I am again explaining to her that her hair is going to fall out again after being told that it wouldnt (by doctors, not me). Yes she is beautiful without hair, Im her mommy I no this and I love her with or without hair (not that these people are saying I dont) but please put yourself in my shoes. We were getting a somewhat normal life, know one was asking us "does she have cancer" we looked normal to a stranger and it was getting a little easier to go places without Haylee feeling eyes on her. Now not only do we have to battle this nightmare on the inside shes going to have to show it on the outside again. Its not easy hearing people say its just hair because no it isnt "JUST" hair its hair from a child who is battling cancer. This couldnt of came at the worse time because she was so excited to have hair for her 5th birthday because on her 4th she didnt and now I cant tell her weather she will or wont because I have no idea. 1 week my little girl will be 5 and I wish i could take this all away from her, I wish I could just have 1 hour of a normal life and not a cancer life. But I cant..........  Why because I have a child with cancer and no longer a normal life.

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